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Current Opening Studies - Giant Cell (Temporal) Arteritis (GCA) Studies

5502: Longitudinal Protocol for Giant Cell Arteritis

Status: Recruiting

Summary:

Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.

In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time.  The data from the longitudinal studies will be used by scientists to study the genetics and causes of vasculitis, find new ways to track disease and predict responses, to understand how to treat patients, and much more.

Target Enrollment:

A total of 250 patients with GCA will be enrolled.

Patients will have a diagnosis of GCA, according to the American College of rheumatology (ACR) criteria for classification of GCA, meeting at least 3 pre-defined criteria at the time of diagnosis.

How to Participate:

In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.

  • Boston University School of Medicine, Boston, MA
    Jess Martin
    Study Coordinator
    E-mail: jmartin@bu.edu
    Phone: 617-414-2507

  • Cleveland Clinic Foundation, Cleveland, Ohio
    Katherine Tuthill
    Study Coordinator
    E-mail: tuthillk@ccf.org
    Phone: 216-444-5257

  • Mayo Clinic College of Medicine, Rochester, MN
    Jane Jaquith
    Study Coordinator
    E-mail: jaquith.jane@mayo.edu
    Phone: 507-284-4502

  • Johns Hopkins Vasculitis Center, Baltimore, MD
    Cynthia Bethea
    Study Coordinator
    E-mail: cbethea3@jhmi.edu
    Phone: 410-550-4390

  • St. Joseph's Healthcare, Hamilton, ON
    Sandra Messier, RCT
    Vascular Medicine Research Coordinator
    E-mail: smessier@stjoes.ca
    Phone: 905-522-1155 Ext. 35873

  • University of Toronto Mount Sinai Hospital, Toronto, ON
    Sara Sutherland, RN BScN
    Study Coordinator
    E-mail: SWebster2@mtsinai.on.ca

    Deborah Weber, RN, CCRC
    Study Coordinator
    E-mail: dweber@mtsinai.on.ca

    Phone: 416-586-8616

 

Join the Contact Registry for: Giant Cell (Temporal) Arteritis (GCA)

Longitudinal Study Flyer For: Giant Cell Arteritis [PDF]

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Join the VCRC Contact Registry