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Current Studies - Churg-Strauss Syndrome (CSS)
5506: Longitudinal Protocol for Eosinophilic granulomatosis with polyangiitis (Churg-Strauss)
Status: Recruiting
Summary:
Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.
In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time. The data from the longitudinal studies will be used by scientists to study the genetics and causes of vasculitis, find new ways to track disease and predict responses, to understand how to treat patients, and much more.
Target Enrollment:
A total of 250 patients with CSS will be enrolled.
Patients will have disease in various stages and of different duration. An adaptation of the American College of Rheumatology (ACR) criteria will be used for the diagnosis of CSS. At the time of inclusion, patients must have documented evidence of small vessel vasculitis and 4 pre-defined criteria.
How to Participate:
In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.
United States
Massachusetts
- Boston University School of Medicine, Boston
Daniel Finkel
Study Coordinator
E-mail: dfinkel@bu.edu
Phone: 617-414-2509
Minnesota
- Mayo Clinic College of Medicine, Rochester, MN
Sara Biorn
Study Coordinator
E-mail: biorn.sara@mayo.edu
Phone: 507-284-4862
Ohio
- Cleveland Clinic Foundation, Cleveland
Katie Gartner
Study Coordinator
E-mail: gartnek@ccf.org
Phone: 216-445-1397
Pennsylvania
Utah
Canada
Ontario
- St. Joseph's Healthcare, Hamilton, ON
Sandra Messier, RCT
Vascular Medicine Research Coordinator
E-mail: smessier@stjoes.ca
Phone: 905-522-1155 Ext. 35873
- University of Toronto Mount Sinai Hospital, Toronto
Julia Farquharson
Study Coordinator
E-mail: jfarquharson@mtsinai.on.ca
Phone: 416-586-8616
Join the Contact Registry for: Churg-Strauss Syndrome (CSS)
Download: Study Flyer for Longitudinal Protocol for Churg-Strauss Syndrome [.pdf]
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