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Current Studies - Eosinophilic granulomatosis with polyangiitis (Churg-Strauss)

5506: Longitudinal Protocol for Eosinophilic granulomatosis with polyangiitis (Churg-Strauss)

Status: Recruiting

Summary:

Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.

In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time.  The data from the longitudinal studies will be used by scientists to study the genetics and causes of vasculitis, find new ways to track disease and predict responses, to understand how to treat patients, and much more.

Target Enrollment:

A total of 250 patients with CSS will be enrolled.

Patients will have disease in various stages and of different duration. An adaptation of the American College of Rheumatology (ACR) criteria will be used for the diagnosis of CSS. At the time of inclusion, patients must have documented evidence of small vessel vasculitis and 4 pre-defined criteria.

How to Participate:

In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.

United States

Massachusetts

  • Boston University School of Medicine, Boston
    Naomi Amudala
    Study Coordinator
    E-mail: namudala@bu.edu
    Phone: 617-414-2512

Minnesota

  • Mayo Clinic College of Medicine, Rochester, MN
    Sara Biorn
    Study Coordinator
    E-mail: biorn.sara@mayo.edu
    Phone: 507-284-4862

Ohio

  • Cleveland Clinic Foundation, Cleveland
    Katie Gartner
    Study Coordinator
    E-mail: gartnek@ccf.org
    Phone: 216-445-1397

Pennsylvania

  • University of Pennsylvania, Philadelphia
    Brian Rice
    Study Coordinator
    E-mail: brian.rice@uphs.upenn.edu
    Phone: 215-614-4407

  • University of Pittsburgh, Pittsburgh, PA
    Dawn McBride, RN, BA
    Study Coordinator
    E-mail: dlmc@pitt.edu
    Phone: 412-586-3545

Utah

Canada

Ontario

  • St. Joseph's Healthcare, Hamilton, ON
    Sandra Messier, RCT
    Vascular Medicine Research Coordinator
    E-mail: smessier@stjoes.ca
    Phone: 905-522-1155 Ext. 35873

  • University of Toronto Mount Sinai Hospital, Toronto
    Samyukta Jagadeesh
    Study Coordinator
    E-mail: sjagadeesh@mtsinai.on.ca
    Phone: 416-586-8616

 

Join the Contact Registry for: Churg-Strauss Syndrome (CSS)

Download: Study Flyer for Longitudinal Protocol for Churg-Strauss Syndrome [.pdf]