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Information for Patients

How to Refer a Patient to the VCRC Center – for Research Participation:

To refer a patient for participation in a research study or to determine if a patient is potentially eligible for any of the VCRC research studies, simply click on the appropriate link for the nearest or preferred VCRC site and make contact directly with the principal investigator or administrative personnel at that center. You can also always contact the VCRC Coordinating Center at vcrc@bu.edu.

How to Help Patients Self-Identify Themselves for Potential Research Participation in the VCRC:

The VCRC, and the entire Rare Disease Clinical Research Network, has developed a Patient Contact Registry for the anonymous self-identification for patients with the six VCRC diseases. This electronic database will allow patients to be notified by the VCRC for potential participation in various research projects and updates on the VCRC research programs. Patients must sign-up themselves and this is easily done through the VCRC website at the following link: http://rdcrn.epi.usf.edu/vcrc/registrymenu.htm

Participating Clinical Centers

  
Join the VCRC Contact Registry