The Urea Cycle Disorders Consortium
News and Events  

2013

 

4th International Symposium on Urea Cycle Disorders: Catalyzing New Therapeutic Approaches
Satellite Symposium to the 12th International Congress on Inborn Errors of Metabolism
September 1-2, 2013
Barcelona, Spain
Download: Symposium Perspectus [.pdf]

 

 

2012

UCDC Events | UCDC Publications

ABC News Story: April 26, 2012 - ABC News featured a story on a young man with ASA and chronically high blood pressure. Dr. Brendan Lee’s (Baylor College of Medicine) ASA and nitric oxide research led to a new approach to treat his condition.  http://abcnews.go.com/Health/boy-toxic-buildup-breakthrough-treatment/story?id=16213994.

Washington Post: November 25, 2010 – Dr. Uta Lichter-Konecki diagnoses girl with UCD.  http://www.washingtonpost.com/wp-dyn/content/article/2010/11/24/AR2010112406714.html

Good Morning America: May 7, 2006 - Mark Batshaw, M.D., Principle Investigator for the Urea Cycle Disorders Consortium and member of the NUCDF Medical Advisory Board, was interviewed by Good Morning America for a segment that aired May 7, 2006.  The segment profiled the Rare Diseases Clinical Research Centers, sponsored by the National Institutes of Health.  The segment focused on our Urea Cycle Disorders Consortium as an example of this pioneering NIH project.

2010

Washington Post Featured Story: Saving a girl from her own body's poisons Read More >

UCDC Launches New Web Site en Español! Mira aqui!

Urea Cycle Disorders Consortium 2010 Summer Conference
Boston Marriott Cambridge, Cambridge, Massachusetts
July 8-9, 2010
For more information email: jseminar@cnmc.org

2010 National Urea Cycle Disorders Foundation Annual Conference
Boston Marriott Cambridge, Cambridge, Massachusetts
July 9-11, 2010
Watch the NUCDF website for more information about this event:  www.nucdf.org/events.htm

2009

Satellite Symposium to the 11th International Congress on Inborn Errors of Metabolism
August 27-29, 2009
Estancia Hotel, La Jolla, California
For more information: www.nucdf.org/UCD_Satellite.htm

2009 National Urea Cycle Disorders Foundation Annual Conference
July 24-26, 2009
Hilton Pasadena, Pasadena, California
For more information: www.nucdf.org/events.htm

2008

National Urea Cycle Disroders Foundation Annual Family Conference
June 27-29, 2008
Regal Sun Resort, Orlando, FL
For more information:  www.nucdf.org
Contact and registration: Cindy@nucdf.org

2007

2007 National Urea Cycle Disorders Foundation Annual Conference
July 6-8, 2007
Grand Hyatt Hotel, Washington D.C.
For information: www.nucdf.org or contact: Cindy@nucdf.org

2006

May 5, 2006 Press Release: NIH Launches Clinical Studies Nationwide to Investigate Rare Diseases

2006 NUCDF Annual Family Conference
July 7-9, 2006
Marriott Cleveland Downtown at Key Center
Cleveland, Ohio
www.nucdf.org

2005

2005 NUCDF Annual Family Conference
June 17-19
The Woodlands Resort
Houston, Texas

Society for Inherited Metabolic Disorders Annual 2005 Meeting
March 6-9
Asilomar Conference Center
Pacific Grove, California
http://www.simd.org

2003

NIH Establishes Rare Diseases Clinical Research Network 11.03.03

Office of Rare Diseases - Research Spotlight 11.03.03