About Us - Spotlight on Rare Diseases - Newsletter of the NIH Rare Diseases Clinical Research Network

Newsletter of the NIH Rare Diseases Clinical Research Network
Volume 2, Issue 1. Spring 2011

NIH Researchers Identify genetic cause of new vascular disease – Rare disease is the first discovered in Undiagnosed Diseases Program
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Statement Issued from the 2nd Meeting of the International Rare Diseases Research Consortium
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Rare Diseases Day 2011
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Editor

David Robertson, MD
Vanderbilt University

Assistant Editors

Cindy Dorminy MEd, LPN
Vanderbilt University

Jennifer Lloyd
University of South Florida, Tampa

Editorial Board

Richard Barohn, MD
University of Kansas

Robert C. Griggs, MD
University of Rochester

Hyder Jinnah, MD, PhD
Emory University

Peter A. Merkel, MD, MPH
Boston University

Alan Percy, MD
University of Alabama

Jean-Baptiste Roullet, PhD
Oregon Health & Science University

Robert D. Steiner, MD
Oregon Health & Science University

www.RareDiseasesNetwork.org	The Rare Diseases Clinical Research Network (RDCRN) was established by the National Institutes of Health (NIH) to develop research studies for rare diseases, and to encourage cooperative partnerships among researchers at over 150 clinical centers around the world. This increased cooperation may lead to discoveries that will help treat and perhaps prevent these rare diseases, as well as produce medical advances that will benefit the population in general. The Rare Diseases Clinical Research Network is comprised of a Data Management Coordinating Center and 19 consortia studying over 100 rare diseases.
	Funding and/or programmatic support for the Rare Diseases Clinical Research Network (RDCRN) has been provided by NIH Office of Rare Diseases Research (ORDR), NINDS, NIAID, NIDDK, NICHD, NIAMS, NIAID, NIDCR, NHLBI, and NCI.
The National Institutes of Health does not endorse or recommend any commercial products, processes, or services. The views expressed in written materials or publications do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention by trade names, commercial practices, or organizations imply endorsement by the U.S. Government.