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Support and Advocacy Groups
Support and Advocacy groups play an important role in facilitating discussion about living with Rare Thrombotic Diseases. Open discussion has been found to be beneficial and supportive to not only patients, but also family and friends. Consider contacting a support of advocacy group. Links for each disease are provided below. Text of this nature should go here.
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Antiphospholipid Antibody Syndrome (APS)
Antiphospholipid Antibody Syndrome (APS) Foundation of America
The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services.
Hughes Syndrome Foundation
Foundation for patients with APS providing patient information and support, membership options, information for physicians, the latest research and conferences.
More Support Groups
Factor V Leiden Thrombophilia Support Page
National Alliance for Thrombosis and Thrombophilia
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