Rare Thrombotic Diseases Consortium

Image of a Girl and her Mother talking together

Useful Links and Resources

NORD - National Organization for Rare Disorders Inc.
National website describing up-to-date news on rare diseases and some of the latest research, programs and services available for patients.

Antiphospholipid Antibody Syndrome

Antiphospholipid Antibody Syndrome (APS) Foundation of America

Anti Phospholipid Antibody Syndrome
British website describing some of the symptoms of APS, differential diagnoses, treatments, etc ., as well as some personal stories, links to a patient chat room and information on other autoimmune disorders.

MedicineNet.com: Antiphospholipid Syndrome
Information on APS, treatments, causes and lab tests, written by William Shiel, M.D.

http://neuroland.com/cvd/aps.htm
Information for physicians on clinical manifestations of APS, lupus and catastrophic antiphospholipid syndrome, including a discussion of treatments and sources of further reading.

Hughes Syndrome Foundation
Foundation for patients with APS providing patient information and support, membership options, information for physicians, the latest research and conferences.

http://rarediseases.about.com/od/rarediseasesa/a/120504.htm
Rare diseases search page on APS symptoms, diagnosis and treatments.

Yahoo Groups - Antiphospholipid Syndroms
International Support Group/chat room for patients with APS.

Delphi Forums - Antiphospholipid Antibody Syndrome Forum
An open forum/chat group for patients with APS.

Antiphospholipid Antibody Related Diseases and Conditions

Lupus (SLE): http://www.medicinenet.com/systemic_lupus/article.htm
Information on lupus, including treatments, causes and lab tests, written by William Shiel, M.D.

Migraine Headache:
http://www.medicinenet.com/migraine_headache/article.htm
Information on migraines, including symptoms, diagnoses, treatments and causes, written by Dr Dennis Lee, M.D.

Miscarriage: http://www.medicinenet.com/miscarriage/article.htm
Information on miscarriages, symptoms, diagnoses, treatments and causes, written by Leon Baginski, M.D.

Deep Vein Thrombosis and Pulmonary Embolism: http://www.medicinenet.com/deep_vein_thrombosis/article.htm
Information on deep vein thromboses and pulmonary emboli, including symptoms, diagnoses, treatments and causes, written by Leon Baginski, M.D.

Catastrophic APS

ARD Online: Long term outcome of catastrophic antiphospholipid syndrome survivors
Scientific research report on the outcome of patients with catastrophic antiphospholipid antibody syndrome, written by Doruk Erkan, M.D., and colleagues.

Arthiritis Foundation: Antiphospholipid Syndrome.
Scientific review article on antiphospholipid antibody syndrome, written by Doruk Erkan, M.D., and Michael Lockshin, M.D.

Pub Med: Catastrophic antiphospholipid syndrome: international consensus statement on classification criteria and treatment guidelines.
Scientific research report on the classification criteria for catastrophic antiphospholipid antibody syndrome, written by R.A. Asherson, M.D., and colleagues.

Medications Used to Treat APS

Warfarin (Coumadin): http://www.medicinenet.com/warfarin/article.htm
Review of warfarin (Coumadin), its uses, medication side effects and drug interactions

Aspirin: http://www.medicinenet.com/acetylsalicylic_acid/article.htm
Review of aspirin, its uses, medication side effects and drug interactions