The PAP Foundation is a not-for-profit organization dedicated to providing hope for a cure to Pulmonary Alveolar Proteinosis, a rare and debilitating lung disease. We seek to provide a global network forum to foster support, education, and collaboration amongst those affected by the disease and those in the scientific and medical communities.
The Goals of the Foundation are to:
- Provide informational and educational resources pertaining to PAP.
- Provide a network of support for PAP patient.
- Raise an awareness of PAP in the medical and lay communities.
- Facilitate communication between the patient and medical communities.
- Sponsor scientific meetings and workshops about PAP.
- Facilitate the procurement of clinical samples that are needed for PAP research.
- Promote fundraising to support PAP research.
- Organize the patient community in support of clinical and basic research related to PAP.
- Develop a global clinical research registry of individuals with PAP.
Also see: PAP Brochure |
