The Rare Genetic Steroid Disorders Consortium
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Study Name: 5601 - The Natural History of Rare Genetic Steroid Disorders: Apparent Mineralocorticoid Excess (AME)

Study Status: Recruiting

For: Apparent Mineralocorticoid Excess (Low Renin Hypertension)

Summary:

Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.
The objective of this project is to observe the natural history of apparent mineralocorticoid excess (AME)

How to Participate:

In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.

  • Mt. Sinai School of Medicine (GSDC)
    New York, New York
    Principal Investigator: Maria New, MD
    Contact Person: Claire Gilbert
    Office: (212) 241-7099
    E-mail: claire.gilbert@mssm.edu