Angelman, Rett, and Prader-Willi Syndromes Consortium

NEPTUNE: Nephrotic Syndrome Rare Disease Clinical Research Network

Autonomic Rare Diseases Clinical Research Consortium

Porphyrias Consortium

Brain Vascular Malformation Consortium

Primary Immune Deficiency Treatment Consortium (PIDTC)

Chronic Graft Versus Host Disease Consortium (cGHVD)

Rare Kidney Stone Consortium

Genetic Diseases of Mucociliary Clearance Consortium

Salivary Gland Carcinomas Consortium

Inherited Neuropathies Consortium

STAIR: Sterol and Isoprenoid Diseases Consortium

Lysosomal Disease Network

Urea Cycle Disorders Consortium

North American Mitochondrial Disease Consortium

Vasculitis Clinical Research Consortium

Join the Contact Registry

 

 

 

 

 

Angelman, Rett, and Prader-Willi Syndromes Consortium

Autonomic Rare Diseases Clinical Research Consortium

Brain Vascular Malformation Consortium

Chronic Graft Versus Host Disease Consortium (cGHVD)

Genetic Diseases of Mucociliary Clearance Consortium

Inherited Neuropathies Consortium

Lysosomal Disease Network

North American Mitochondrial Disease Consortium

NEPTUNE: Nephrotic Syndrome Rare Disease Clinical Research Network

Porphyrias Consortium

Primary Immune Deficiency Treatment Consortium (PIDTC)

Rare Kidney Stone Consortium

Salivary Gland Carcinomas Consortium

STAIR: Sterol and Isoprenoid Diseases Consortium

Urea Cycle Disorders Consortium

Vasculitis Clinical Research Consortium


About the RDCRN

The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and the Office for Rare Diseases Research (ORDR). RDCRN was created to facilitate collaboration among experts in many different types of rare diseases. Our goal is to contribute to the research and treatment of rare diseases by working together to identify biomarkers for disease risk, disease severity and activity, and clinical outcome, while also encouraging development of new approaches to diagnosis, prevention, and treatment. More About the RDCRN >


NIH does not endorse or recommend any commercial products, processes, or services. The views expressed in written materials or publications do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention by trade names, commercial practices, or organizations imply endorsement by the U.S. Government. Read Disclaimer >