Resources
Additional Medical Information
The experts of The Porphyrias Consortium and the American Porphyria Foundation promote treating your health with the respect it deserves, and recommends looking to reliable sources for your medical information. Websites that are backed by scientific research aree good places to start. Some suggestions include:
Centers for Disease Control (CDC)
Criver’s Online Metabolic and Molecular Bases of Inherited Disease
General Health information from NIH
Merck Manual of Diagnosis and Therapy
National Institutes of Health (NIH)
Online Mendelian Inheritance in Man
The American Porphyria Foundation
U.S. Food & Drug Administration
University of Capetown Porphyria Center
University of Queensland Porphyria Research Unit
Medical Dictionaries
The following are some references to help you understand the medical terminology that you might find when reading and researching the porphyrias:
Genetics Glossary from NIH
Merriam-Webster Medical Dictionary
Porphyria Dictionary from the University of Cape Town Porphyria Center
