The Porphyrias Consortium aims to expand knowledge about the porphyrias and thereby benefit patients and their families. The Porphyrias Consortium enables a large scale collaborative effort to develop new strategies and methods for diagnosis, treatment, and prevention of illness and disability resulting from these rare disorders. Learn More >
Disorders In Depth:
Acute Porphyrias:
Cutaneous Porphyrias:
Symptoms: Does your patient have a porphyria?
Participating Clinical Centers
Join a Study: Find Information About Current Research
Stay Informed:
How Can I Help? - Why your Participation Matters
Symptoms: Do you have a porphyria?
The American Porphyria Foundation and Porphyria specialist Dr. Karl Anderson invite you to participate in an informative question-and-answer conference call. This is scheduled for Saturday, November 6th, 2010, from 12 Noon until 3:30 pm, Central Time. The acute porphyrias (AIP, HCP, and VP) are the topics from 12 Noon until 1:30, and EPP, PCT, and CEP are the topics from 2:00 until 3:30.
This conference call is free to members of the APF and is $10 to all non members. We encourage you to join, so as to benefit from a forum like this. Your support is shown through the $35 suggested annual donation. To register, call the APF TOLL FREE at (866) APF-3635 or (866) 273-3635. All wishing to participate in the conference call must register prior to the conference call. Upon registering you will receive dial-in instructions.
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