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Advocacy and Support Groups
Cystic Fibrosis Patient Organizations
United States
The Cystic Fibrosis Foundation www.cff.org
Canada:
The Canadian Cystic Fibrosis Foundation www.cysticfibrosis.ca
PCD Patient Organizations:
United States
PCD Foundation, www.pcdfoundation.org
10137 Portland Ave. South
Minneapolis, Minnesota 55420-5050
612-368-1261
Contact: Michele Manion
United Kingdom
PCD Family Support Group, www.pcdsupport.org.uk
Contact: Fiona Copeland
Europe (Netherlands)
PCD Belangengroep, www.p-c-d.org/en
Contact: Tiny Visser
NTM Pulmonary Disease Patient Organizations
United States
Nontuberculous Mycobacteria Info and Research, Inc. (NTMiR), ntminfo.org
1550 Madruga Ave, Suite 230
Coral Gables, Florida 33146
(305) 667-6461 x26
Contact: Susan Wisliceny
Idiopathic Bronchiectasis Patient Organizations
United States
Bronchiectasis Research Registry/COPD Foundation, www.cscc.unc.edu/bron/descriptpub.php
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