The Genetic Disorders of Mucociliary Clearance Consortium
Mother and Child  

Advocacy and Support Groups

The Cystic Fibrosis Foundation

PCD Patient Organizations:

United States

PCD Foundation, http://www.pcdfoundation.org/
PO Box 19195
Minneapolis, Minnesota 55419
612-965-3116
Contact: Michele Manion

United Kingdom

PCD Family Support Group, http://www.p-c-d.org/en/
Contact: Fiona Copeland

Europe (Netherlands)

PCD Belangengroep, http://www.p-c-d.org/en/
Contact: Tiny Visser

PCD Patient Chat Sites*

PCD Parents Chat Site: http://health.groups.yahoo.com/group/pcdparents/
Kartagener/PCD Chat Site: http://health.groups.yahoo.com/group/kartagener_syndrome/