 |
|
About The Contact Registry
The GDMCC Patient Contact Registry is a method by which patients (and their families) with mucociliary clearance disorders can register themselves to be contacted in the future about clinical research opportunities. An online Registry form exists for all the GDMCC diseases currently being studied:
Download the Contact Registry Paper Form
New! The Rare Diseases Network has created a paper version of the Contact Registry form. This form can be downloaded by Physicians and Advocacy Groups in order to provide the form to those who need assistance outside the internet.
PDF Viewer Required
|
 |
