Primary Ciliary Dyskinesia Family Education Day

July 23, 2005

The third-annual PCD Family Education Day will be held on Saturday, July 23, 2005 in St. Louis , Missouri . The event will be held in the McDonnell Pavilion at Rivercamp in the world-famous St. Louis Zoo, and will feature speakers from St. Louis Children's Hospital, Washington University School of Medicine, and the University of North Carolina at Chapel Hill. Registration forms and cross-infection guidelines are available for download at the PCD Foundation web site, www.pcdfoundation.org. The program is free, and forms can also be obtained by contacting the PCD Foundation.

Expected speakers and topics include:

Thomas Ferkol, MD, Washington University: Introduction

Johnny Carson, PhD, University of North Carolina: "Diagnosis of primary ciliary dyskinesia"

James Forsen, MD, Washington University: "The evaluation and treatment of upper airway disease in primary ciliary dyskinesia."

Margaret Leigh, MD, University of North Carolina: "The evaluation and treatment of lung disease in primary ciliary dyskinesia."

Stuart Sweet, MD, Washington University: "Lung transplantation"

Michael Knowles, MD, University of North Carolina: "The Genetic Determinants of Mucociliary Clearance Consortium: the beginnings of a nationwide care network."

Primary Ciliary Dyskinesia: Patient Organization Contact Information

PCD Patient Organizations:

PCD Patient Chat Sites* 

PCD Parents Chat Site: http://health.groups.yahoo.com/group/pcdparents/
Kartagener/PCD Chat Site: http://health.groups.yahoo.com/group/kartagener_syndrome/

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