 Genetic Diseases of Mucociliary Clearance Consortium
The Cystic Fibrosis Foundation
PCD Patient Organizations:
United States
PCD Foundation, pcdfoundation.org
10137 Portland Ave. South
Minneapolis, Minnesota 55420-5050
612-368-1261
Contact: Michele Manion
Nontuberculous Mycobacteria Info and Research, Inc. (NTMiR), ntminfo.org
1550 Madruga Ave, Suite 230
Coral Gables, Florida 33146
(305) 667-6461 x26
Contact: Susan Wisliceny
United Kingdom
PCD Family Support Group, www.pcdsupport.org.uk
Contact: Fiona Copeland
Europe (Netherlands)
PCD Belangengroep, p-c-d.org/en
Contact: Tiny Visser
PCD Patient Chat Sites*
PCD Parents Chat Site: health.groups.yahoo.com/group/pcdparents
Kartagener/PCD Chat Site: health.groups.yahoo.com/group/kartagener_syndrome
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