CPAG

Angelman, Rett, and Prader-Willi Syndromes Consortium

Autonomic Rare Disorders Consortium

Brain Vascular Malformation Consortium

Consortium for Clinical Investigation of Neurological Channelopathies

Clinical Research Consortium for Spinocerebellar Ataxias

Chronic Graft Versus Host Disease Consortium

Dystonia Coalition

Genetic Diseases of Mucociliary Clearance Consortium

Inherited Neuropathies Consortium

Lysosomal Disease Network

NEPTUNE: Nephrotic Syndrome Study Network

North American Mitochondrial Disease Consortium

Porphyrias Consortium

Primary Immune Deficiency Treatment Consortium

Rare Kidney Stone Consortium

Salivary Gland Carcinomas Consortium

Sterol and Isoprenoid Research Consortium

Urea Cycle Disorders Consortium

Vasculitis Clinical Research Consortium

ARPWSCAngelman, Rett, and Prader-Willi Syndromes Consortium

 

Angelman Syndrome Foundation

Eileen Braun, Executive Director
Tel: 800-432-6435 or (630) 978-4245 local & international
Fax : 630-978-7408
E-mail: ebraun@angelman.org
on the web:www.angelman.org


Prader Willi Syndrome Association Logo
Prader-Willi Syndrome Association ( USA )

Janalee Heinemann
Tel: 1-800-926-4797
E-mail: pwsausa@pwsausa.org
on the web: www.pwsausa.org and www.pwsausa.org/rdcrn.htm


International Rett Syndrome Association LogoInternational Rett Syndrome Foundation

Kathryn Kissam
Tel: 804-519-6231
E-mail: kkissam@rettsyndrome.org

Jennifer Endres
Tel: 508-362-2220
jendres@rettsyndrome.org

on the web: www.rettsyndrome.org