2010 Conference Resources

Abstract and Poster Session

Conference attendees are encouraged to submit an abstract which are then reviewed by the planning committee. The abstracts selected by the planning committee were invited to be displayed as a poster during the conference.

Investigators working on rare diseases provided feedback and advice during the poster session.

PDF Viewer is required.

View abstracts submitted for the 2010 CCRRD >

Rare Diseases Clinical Research Network Summaries >

------------------------------

2010 CCRRD Presentations Videos and Slides

Welcome and Introduction
Peter A. Merkel, MD, MPH; Stephen C. Groft, PharmD
[ Watch Video ]

Creating, Maintaining, and Growing Clinical Research Networks in Rare Diseases
Peter A. Merkel, MD, MPH
[ Watch Video ] [ Download Slides ]

Clinical Trial Design Issues and Options for the Study of Rare Diseases
Jeffrey Krischer, PhD
[ Watch Video ] [ Download Slides ]

The CTSA Program and Rare Disease Research
Robert D. Steiner, MD
[ Watch Video ] [ Download Slides ]

Study Designs for Rare Diseases
Keith Hull, MD, PhD
[ Watch Video ] [ Download Slides ]

Industry Perspective of Orphan Diseases Drug Development
Edward M. Kaye, MD
[ Watch Video ] [ Download Slides ]

Conflicts of Interest and Rare Diseases
Susan H. Ehringhaus
[ Watch Video ] [ Download Slides ]

Parent, Advocate, Researcher (The View From My Parachute)
Jannine D. Cody, PhD
[ Watch Video ] [ Download Slides ]

 

2007 Conference Resources

View abstracts submitted for the 2007 CCRRD >