CINCH - Take Action - Support and Advocacy Groups

Support and Advocacy Groups

Support and advocacy groups for CINCH diseases provide an important resource to patients that is both informative and helpful. Patients, family and friends can share their experiences while receiving the support they need.

Andersen-Tawil Syndrome (a form of Periodic paralysis)

Periodic Paralysis Resource Center
Muscular Dystrophy Association
The Muscular Dystrophy Campaign Web Site - A UK based charity that gives advice and support to patients and relatives with muscular dystrophy and allied disorders; this web site includes information on non-dystrophic myotonias and periodic paralysis.

Join the Registry for this Disorder | What is Anderson-Tawil Syndrome?

Episodic Ataxias

National Ataxia Foundation

Join the Registry for this Disorder | What are Episodic Ataxias?

Non-dystrophic Myotonia

Muscular Dystrophy Association
The Muscular Dystrophy Campaign Web Site - A UK based charity that gives advice and support to patients and relatives with muscular dystrophy and allied disorders; this web site includes information on non-dystrophic myotonias and periodic paralysis

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