CINCH - Take Action - Find a Study

Find a Study

How do I learn more about current open studies?

Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study

How do I participate in a study?

Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.

Non-dystrophic Myotonic Disorders

5303: Nondystrophic Myotonias: Genotype-Phenotype Correlation and Longitudinal Study

Join the Registry for this Disorder | What are Non-dystrophic Myotonic Disorders?

--------------------------------------------------------------

Andersen-Tawil Syndrome (a form of Periodic paralysis)

Join the Registry for this Disorder | What is Anderson-Tawil Syndrome?

--------------------------------------------------------------

Episodic Ataxias

5302: Episodic Ataxia Syndrome: Genotype-Phenotype Correlation and Longitudinal Study

Join the Registry for this Disorder | What are Episodic Ataxias?

--------------------------------------------------------------

Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.

This list was last updated on 28 November 2007