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Contact Information

This is for administrative contacts only. A number to call about studies will be provided as soon as we are ready to enroll participants.

Barbara E. Herr, MS, CCRC
Assistant Professor of Neurology
Channelopathy Project Manager
University of Rochester

email: Barbara_Herr@URMC.Rochester.edu

If you have questions regarding this web site please contact the webmaster.

Looking for specific contact information for one of our participating centers? Please visit our Participating Clinical Centers page.

Link to the Department of Health and Human Services Web SiteLink to the National Institutes of Health Web SiteLink to the National Center for Research ResourcesNational Institute of Neurological Disorders and Stroke Web SiteLink to the Rare Diseases Clinical Research Network Web Site