Bone Marrow Failure Disease Consortium News

For Physicans and Advocacy Groups: RDCRN Makes Contact Registry Available for Download

February 1, 2006

Download the Contact Registry Paper Form

New! In order to facilitate those without internet access, the Rare Diseases Network has now made a paper version of the Contact Registry form. This form can be downloaded by Physicians and Advocacy Groups in order to provide the form to those who need assistance outside the internet.

All forms are two pages, which MUST be printed on one sheet of paper (front and back). Once you have opened the form, select print from the file menu. When the printing dialogue box opens, the 2-side printing option can usually be found by clicking "properties."

*PDF viewer required.

About The Contact Registry

The BMFC Patient Contact Registry is a method by which patients (and their families) with bone marrow failure diseases can register themselves to be contacted in the future about clinical research opportunities. An online Registry form exists for all the BMFC diseases currently being studied:

Back to the main news index