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Study Information

Prader-Willi Syndrome (PWS):

• 5202: Prader-Willi Syndrome and Early-onset Morbid Obesity Natural History Clinical Protocol
• 5207: Sleep Abnormalities in Rare Genetic Disorders: Angelman Syndrome (AS), Rett Syndrome (RTT), and Prader-Willi Syndrome (PWS)

Angelman Syndrome (AS):

• 5203: Angelman Syndrome Natural History Study
• 5204: Efficacy of a Therapeutic Treatment Trial in Angelman Syndrome
• 5207: Sleep Abnormalities in Rare Genetic Disorders: Angelman Syndrome (AS), Rett Syndrome (RTT), and Prader-Willi Syndrome (PWS)

Rett Syndrome:

• 5201: Rett Syndrome Natural History Study
• 5207: Sleep Abnormalities in Rare Genetic Disorders: Angelman Syndrome (AS), Rett Syndrome (RTT), and Prader-Willi Syndrome (PWS)

Learn More

• Disease Definitions
• Useful Links
• Frequently Asked Questions
• Term Glossary - Coming across any terms you are unsure of? Find them in our Glossary.

Take Action

• Support and Advocacy Group Information
• Why is My Participation Important? - Learn the fundamentals of the Registry.
• Join the Registry
• Find a Trial - Learn more about trials in action, and future trials.

Information for Physicians

• Disease Definitions
• more useful links

ARPWSC Information

• Contact Information
• Participating Clinical Centers
  • Angelman Syndrome
    • Baylor College of Medicine - Houston, TX
    • Children's Hospital Boston - Boston, MA
    • Rady Children's Hospital San Diego - San Diego, CA
    • Greenwood Genetic Center - Greenwood, SC
    • Vanderbilt Children's Hospital - Nashville, TN
  • Rett Syndrome
  • Baylor College of Medicine - Houston, TX
  • Greenwood Genetic Center - Greenwood, SC
  • University of Alabama at Birmingham - Birmingham, AL
  • Children's Hospital Boston - Boston, MA
  • Prader-Willi Syndrome
  • University of California at Irvine Medical Center - Irvine, CA
  • University of Florida Health Science Center - Gainesville, FL
  • Vanderbilt Children's Hospital - Nashville, TN
  • Kansas University Medical Center - Kansas City, KS
• What is the Angelman, Rett and Prader-Willi Syndromes Consortium (ARPWSC)?
• News and Events

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