What is the Angelman, Rett, and Prader-Willi Syndromes Consortium?

The Angelman, Rett, and Prader-Willi Syndromes Consortium is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with Angelman, Rett, and Prader-Willi Syndromes through research.

Since Angelman, Rett, and Prader-Willi Syndromes are rare, there are low numbers of research volunteers and this adds a greater level of difficulty for researchers struggling to learn more about these disorders.

The purpose of this consortium is to provide a way for patients to join with doctors and researchers by participating in research studies. The greater the collaboration between doctors and patients, the more we can learn about these disorders. This important first step is necessary if we are ever to find newer treatments.