What is the
Angelman, Rett and Prader-Willi Syndromes Consortium?
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Goals of the Angelman, Rett, and Prader-Willi Syndromes Consortium are to:
- Provide patients and their physicians with the most up-to-date information possible about Angelman, Rett, and Prader-Willi syndromes
- Link patients with doctors who specialize in Angelman, Rett, and Prader-Willi syndromes
- Help patients learn about and get involved with clinical trials that may help in the treatment of their illness
- Research new treatments and a cure for Angelman, Rett, and Prader-Willi syndromes
- Ensure that clinical trials are held in several locations across the United States instead of in a single hospital
- Better understand, diagnose and treat Angelman, Rett, and Prader-Willi syndromes
- Provide better training for doctors and medical students about Angelman, Rett, and Prader-Willi syndromes
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