Welcome! The Angelman, Rett, and Prader-Willi Syndrome Consortium (ARPWSC) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in genetic and neurodevelopmental disorders. It is our goal to improve the care of patients with Angelman Syndrome, Prader-Willi Syndrome, and Rett Syndrome.

What can I do?

Take Action. Learn more about joining our registry. Research offers no guarantees, but one thing is for certain, research cannot move forward with out your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments. Learn More>>>

   
Family and Friends - Learn More
Knowledge read from a book

The Disorders We Study:

Term Glossary

Frequently Asked Questions

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Join the Contact Registry!

Why Your Participation Matters

Learn About Current Research Studies

Find Support or Advocacy Groups in Your Area
Physicians - Learn More
Stethoscope

Syndrome Definitions

Other Helpful Resources

Research: Participating Clinical Sites

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In The News

May 5, 2006 Press Release: NIH Launches Clinical Studies Nationwide to Investigate Rare Diseases

RDCRN Makes Contact Registry Available for Download to Facilitate Those Without Internet Access!

ABC News: Rare Disorder Causes Endless Hunger: Prader-Willi Sufferers Struggle With Uncontrollable Appetite