Sterol and Isoprenoid Research Consortium (STAIR)

Information for Patients and Families

Resources

Office for Human Research Protections (OHRP) - Public Outreach

The Genetics Home Reference Web Site

Genetic Alliance: /www.geneticalliance.org

Smith-Lemli-Opitz Foundation: www.smithlemliopitz.org

United Leukodystrophy Foundation: www.ulf.org

National Nieman Pick Disease Foundation: www.nnpdf.org

www.parseghian.org

www.hids.net

rarediseases.info.nih.gov

www.gard.no

/www.rarediseases.org

www.clinicaltrials.gov