Sterol and Isoprenoid Research Consortium (STAIR)

Information for Patients and Families

Advocacy Information

Angioma Alliance

Smith Lemli Opitz/RSH Foundation

www.smithlemliopitz.org

Sturge Weber Foundation Logo

Ara Parseghian Medical Research Foundation

www.parseghian.org

HHT Foundation International

Foundation for Ichthyosis and Related Skin Types

firstskinfoundation.org

The National Niemann-Pick Disease Foundation

www.nnpdf.org

The United Leukodystrophy Foundation

www.ulf.org