Rare Kidney Stones Consoritum

Get Involved

Advocacy Information

Patient Support and Advocacy Groups specializing in kidney disease and nephrotic syndrome are here to help you.

They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.

  Oxalosis and Hyperoxaluria Foundation
Kim Hollander, Executive Director
201 East 19th Street, Suite 12E
New York, NY 10003
kimh@ohf.org
  International Cystinuria Foundation
Matthew Lewis, President
PO Box 271004
Fort Collins, CO 80527-1004
Matthew.Lewis@colostate.edu
  Cystinuria Support Network
Sue Holden, Moderator
sue@cystinuria.com
  Lowe Syndrome Association
Debbie Jacobs, President
18919 Voss Road
Dallas, TX 75287