Advocacy Information
Patient Support and Advocacy Groups specializing in kidney disease and nephrotic syndrome are here to help you.
They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.
| Oxalosis and Hyperoxaluria Foundation Kim Hollander, Executive Director 201 East 19th Street, Suite 12E New York, NY 10003 kimh@ohf.org |
|
| International Cystinuria Foundation Matthew Lewis, President PO Box 271004 Fort Collins, CO 80527-1004 Matthew.Lewis@colostate.edu |
|
| Cystinuria Support Network Sue Holden, Moderator sue@cystinuria.com |
|
| Lowe Syndrome Association Debbie Jacobs, President 18919 Voss Road Dallas, TX 75287 |






