PIDTC Research Studies
The first two protocols developed by the PIDTC will study children with severe combined immune deficiency disease (SCID), a disorder of the lymphoid cells which results in the complete inability of infants to fight viruses, fungi, parasites, and certain bacteria). One study will focus on children who have already undergone transplantation to identify patient and donor characteristics which affect transplant outcome; the other will follow children who undergo transplant starting in August 2010. It is hoped these two studies will help identify factors which will result in the safest and best treatment options for infants with SCID.
How do I learn more about current open studies?
Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study
How do I participate in a study?
Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.
View Study Information
6902: A Retrospective and Cross - Sectional Analysis of Patients Treated for SCID (1968-2010)
The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.
