Research Studies
How do I learn more about current open studies?
Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study
How do I participate in a study?
Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.
Open Studies
6601: Natural History Evaluation of Charcot Marie Tooth Disease
6602: Genetics of CMT- Modifiers of CMT1A, New Causes of CMT2
6603: Development of CMT Peds Scale for Children with CMT
Upcoming Studies
6608: Survey of Current Management of Orthopaedic Complications in Charcot Marie Tooth Disease Patients
Past Studies:
6604: Development and Validation of a Disability Severity Index for Charcot Marie Tooth Disease
The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.
