Patient Resources for Dystonia - The Dystonia Coalition

:: open recruitment for clinical studies of your disease
:: opening of new clinical sites doing research on rare diseases
:: activities from affiliated awareness and advocacy groups

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Global Dystonia Registry

You Can Help Shape Dystonia Research -

Your responses can help researchers better understand the dystonia experience and help guide future directions in research.

Department of Health and Human Services	National Institutes of Health.
The Dystonia Coalition is a part of NIH Rare Diseases Clinical Research Network (RDCRN). Funding and/or programmatic support for this project has been provided by the National Institute of Neurological Disorders and Stroke (NINDS) and the NIH Office of Rare Diseases Research (ORDR). Read Disclaimer >