
Select one of the types of ataxia below to join the Contact Registry for that ataxia:
How does the Contact Registry Work?
After you have read and agreed to the authorization, the Contact Registry form will appear on your screen. This form asks you for information such as your (or your child's) name, address, birth date, place of birth, email address, or items relevant to your (or your child's) disorders.
What IS the Contact Registry? - Why should I join?
- Ataxia telangiectasia
- Ataxia with oculomotor apraxia (AOA) type 1
- Ataxia with oculomotor apraxia (AOA) type 2
- Ataxia with vitamin E deficiency (AVED)
- Ataxia, unknown cause
- Autosomal recessive ataxia of Charlevoix-Saguenay (ARSACS)
- Dentatorubral-pallidoluysian atrophy (DRPLA)
- Fragile X tremor-ataxia syndrome (FXTAS)
- Friedreich's ataxia
- GAD ataxia
- Gluten ataxia
- Mitochondrial ataxia
- Mitochondrial recessive ataxia syndrome (MIRAS; POLG mutation)
- Multiple system atrophy-cerebellar type (MSA-C)
- Olivopontocerebellar atrophy (OPCA)
- Paraneoplastic ataxia
- Spinocerebellar ataxia 1(SCA1)
- Spinocerebellar ataxia 2(SCA2)
- Spinocerebellar ataxia 3(SCA3/Machado Joseph disease/MJD)
- Spinocerebellar ataxia 4(SCA4)
- Spinocerebellar ataxia 5(SCA5)
- Spinocerebellar ataxia 6(SCA6)
- Spinocerebellar ataxia 7(SCA7)
- Spinocerebellar ataxia 8(SCA8)
- Spinocerebellar ataxia 10(SCA10)
- Spinocerebellar ataxia 11(SCA11)
- Spinocerebellar ataxia 12(SCA12)
- Spinocerebellar ataxia 13(SCA13)
- Spinocerebellar ataxia 14(SCA14)
- Spinocerebellar ataxia 15(SCA15)
- Spinocerebellar ataxia 16(SCA16)
- Spinocerebellar ataxia 17(SCA17)
- Spinocerebellar ataxia 18(SCA18)
- Spinocerebellar ataxia 19(SCA19)
- Spinocerebellar ataxia 20(SCA20)
- Spinocerebellar ataxia 21(SCA21)
- Spinocerebellar ataxia 22(SCA22)
- Spinocerebellar ataxia 23(SCA23)
- Spinocerebellar ataxia 24(SCA24); SPINOCEREBELLAR ATAXIA, AUTOSOMAL RECESSIVE 4; SCAR4
- Spinocerebellar ataxia 25(SCA25)
- Spinocerebellar ataxia 26(SCA26)
- Spinocerebellar ataxia 27(SCA27)
- Spinocerebellar ataxia 28(SCA28)
- Spinocerebellar ataxia 29(SCA29)
- Spinocerebellar ataxia 31(SCA31)
- Sporadic ataxia (onset before 20 years)
- Sporadic ataxia (onset between 20-50 years)
- Sporadic ataxia (onset after 50 years)


Department of Health and Human Services

The Clinical Research Consortium for Spinocerebellar Ataxias (CRC-SCA) is a member of the Rare Diseases Clinical Research Network, which is funded by the National Institutes of Health.