Collectively, the Coalition of Patient Advocacy Groups (CPAG) represents the perspective and interests of all patient advocacy organizations associated with the clinical research consortia. Through collaboration, patient advocacy groups and researchers can make faster progress toward new treatment options and cures, which can improve the lives of all persons and families affected by a rare disease. Learn More > |
News
NUCDF (Urea Cycle Disorders) was recently selected to win the Child Neurology Foundation Advocacy Award of Merit! |
Featured Links
NORD
NIH Office of Rare Diseases
Genetic and Rare Diseases Information Center (GARD)
Genetic Alliance
AARDA
OOPD/FDA
Angel Flight at NIH |