CPAG

Angelman, Rett, and Prader-Willi Syndromes Consortium

Autonomic Rare Disorders Consortium

Brain Vascular Malformation Consortium

Consortium for Clinical Investigation of Neurological Channelopathies

Clinical Research Consortium for Spinocerebellar Ataxias

Chronic Graft Versus Host Disease Consortium

Dystonia Coalition

Genetic Diseases of Mucociliary Clearance Consortium

Inherited Neuropathies Consortium

Lysosomal Disease Network

NEPTUNE: Nephrotic Syndrome Study Network

North American Mitochondrial Disease Consortium

Porphyrias Consortium

Primary Immune Deficiency Treatment Consortium

Rare Kidney Stone Consortium

Salivary Gland Carcinomas Consortium

Sterol and Isoprenoid Research Consortium

Urea Cycle Disorders Consortium

Vasculitis Clinical Research Consortium

BVMC

Brain Vascular Malformation Consortium

 

Angioma AllianceAngioma Alliance

Amy Akers
Tel: 757-623-0615
Email: Amy.Akers@angioma.org
on the web: www.angiomaaliance.org


Sturge-Weber
The Sturge-Weber Foundation

The Sturge-Weber Foundation
Karen L. Ball
Tel: 973-895-4445
Email: kball@sturge-weber.org
on the web: www.sturge-weber.org


HHT Foundation International Inc.

HHT Foundation International Inc.
Marianne S. Clancy, MD
Tel: 800-448-6389
Email: mariannes.clancy@hht.org
on the web: www.hht.org