Information for Patients and Families
Research Studies
How do I learn more about current open studies?
Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study
How do I participate in a study?
Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.
Familial Cavernous Malformations (CCM) - Common Hispanic Mutation
6201: Modifier Genes in Cerebral Cavernous Malformations
6205: Permeability MRI in Cerebral Cavernous Malformations type 1 in New Mexico: Effects of Statins
Sturge-Weber Syndrome (SWS)
6202: Innovative approaches to gauge progression of Sturge-Weber Syndrome
Hereditary Hemorrhagic Telangiectasia (HHT)
6203: Cerebral Hemorrhage Risk in Hereditary Hemorrhagic Telangiectasia
The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.
