The Rare Diseases Clinical Research Network would like to welcome our 14 new consortia! For more information, please see below, and stay tuned for future updates! |
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WelcomeYou have reached the home page for the Rare Diseases Clinical Research Network (RDCRN). Each Consortium within the network provides detailed information on several rare diseases. Important UpdatePlease be advised that some of our consortia will be continuing their research outside of our network and their information will no longer be found within the network web sites. As we make this transition, we will provide our patients and families with available web sites or contact information so that you may continue to be in contact with your rare disease consortium. The following consortia will no longer be operating within the Rare Diseases Clinical Research Network. Please click on one of the links below for more information:
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What if I am unsure of which consortium to visit?Scan the list to the right for a disease name. Once you have located it, click on the link for a brief description which will lead you to the correct consortium. How will this consortium be useful to me?You can take action! Once you have reached the correct consortium, you will be able to join the contact registry for clinical research trials. You will also find several helpful resources that include participating clinical center information, support and advocacy group information and other useful links. Our New Consortia:
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