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Welcome! You have reached the home page for the Rare Diseases Clinical Research Network (RDCRN). Each Consortium within the network provides detailed information on several rare diseases.
What if I am unsure of which consortium to visit?
Scan the list to the right for a disease name. Once you have located it, click on the link for a brief description which will lead you to the correct consortium.
How will this consortium be useful to me?
You can take action! Once you have reached the correct consortium, you will be able to join the contact registry for clinical research trials. You will also find several helpful resources that include participating clinical center information, support and advocacy group information and other useful links.
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The Rare Diseases Clinical Research Network (RDCRN) was created to facilitate collaboration among experts in many different types of rare diseases. Our goal is to contribute to the research and treatment of rare diseases by working together to identify biomarkers for disease risk, disease severity and activity, and clinical outcome, while also encouraging development of new approaches to diagnosis, prevention, and treatment.
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